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Eddie & Sandi's Page

Chattanooga 2018

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Raised: $11,492.00

Goal: $10,000.00

My Great Strides Story

  • Sandi & Eddie with Mary Alice during our 2017 walk!
  • Mary Alice having some fun!

Dear Family and Friends,

Hello again. It is that time of year and we are getting ready for the annual CFF Great Strides walk. You probably heard from me last year but my best friend Bridget & Mike Lane’s daughter Mary-Alice was diagnosed with Cystic Fibrosis when she was 2 months old. She is 13 years old now and is doing well. We are working on raising money for the Great Strides, the Cystic Fibrosis Foundation’s annual event to raise money to cure Cystic Fibrosis (CF). We raised over $10,000.00 last year and we hope to raise even more this year with the help of all of you. Thanks for contributing last year. Your donation will be well spent as 90 cents of every dollar raised by the CF Foundation is used to support its vital programs and research. Your donations have helped, in the following way, in the past year.

In 2012, The FDA approved Kalydeco™for people with the G551D mutation of CF ages 6 and older. The drug is the first to address the underlying cause of CF and opens exciting new doors to research and development that may lead to a cure for all people living with the disease. Results from a Phase 2 trial of Kalydeco in combination with VX-809 show a significant improvement in lung function in people with two copies of the most common CF mutation, Delta F508. The Foundation maintains a robust pipeline of potential therapies that target the disease from every angle. The more drugs in the pipeline, the greater the odds of producing successful therapies and a cure for CF.

CF is a life-threatening genetic disease that affects the respiratory and digestive systems of tens of thousands of children and young adults. As many of you know, Mary-Alice was diagnosed with this genetic disease. Currently there is no cure, but researchers are optimistic that with the recent advances in genetic research there will be one within Mary-Alice’s lifetime.

On Sunday, April 29, 2018 at 2:00pm, we will be walking in the Great Strides-Walk for a Cure 2018 in Chattanooga at Baylor School. It would be wonderful if you could join our walking team, “Braselton Walkers for Mary-Alice”, and solicit sponsors, but if you are unable to participate, please consider making a monetary contribution to this cause by sponsoring us in the walk. Your tax deductible donation can be made payable to the “CF Foundation” and mailed to our home address: 9080 Ivyshaw Landing, Gainesville GA, 30506 or it is safe and secure to click DONATE TO ME  and donate via credit card directly to CF. Any amount is greatly appreciated.

If you would like more information on Cystic Fibrosis or the Great Strides, please see www.cff.org

Thank you for your consideration and support!

Sandi & Eddie Cole

 

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