In September of 2001 at just 12 weeks old, Al Lee was diagnosed with Cystic Fibrosis, the same condition his cousins Donnal and Michelle were born with. Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). Those with CF spend hours a day doing breathing treatments, take numerous medications and frequently have lengthy hospital stays to treat lung infections and other complications.
The last few years have been difficult for Al with a dozen hospital stays and many painful medical procedures, but he continues to have faith that things will get better for children and adults with CF. Currently, there is no cure, but thanks to breakthroughs in research supported by fundraisers such as Great Strides, there are many new drugs in development that could potentially help people with CF lead longer, healthier lives. Time, however, is of the essence.
In 2005, just weeks before his 24th birthday and a little over a year after having a double lung transplant, Donnal lost his fight against CF. Michelle passed away just a few days before Christmas in 2017 after a 2 month hospital stay battling a serious lung infection and complications affecting her heart She was only 29. They left behind loved ones who miss them every day and will never stop wondering what their lives could have been without this terrible disease. Without private donations to fund research, many more precious lives will be lost.
Please consider supporting the Cystic Fibrosis Foundation by making a donation to our Great Strides fundraising campaign today! Your gift is 100-percent tax deductible, and 90 cents from every dollar goes directly towards supporting life-saving research and medical progress. If you would like to sign up as a walker, we would love to have you on our team. Thank you for helping add tomorrows to the lives of people with cystic fibrosis.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.