Three weeks after Cole, a Micro Preemie (25w4d @ 1lb 12oz) was born his family was told that his new born screen came back positive for CF. As a family, they had no idea that Cystic Fibrosis was in their genes! Not only did they spend the first 139 days of his life in the NNICU @ MUSC they met his CF team and learned what needed to do to keep Cole healthy and safe. Fast forward 6 years and Cole is in Kindergarten, and what a year it has been for him! It has been a learning journey for his family and Coles teachers on how to keep him healthy and safe throughout the school year. They have been very blessed to have such a great team at Drayton Hall Elementary who always have Coles best interest in mind. While not in school, Cole stays very active through his weekly swim lessons, almost daily scooter rides and local park visits with his little sister Autumn. Cole has a daily routine, which has been a challenge with the new school year, that must followed so that he can stay healthy. He was introduced to a chest therapy vest this summer. Cole has adapted well and it has allowed him to shorten the time it takes his family to give him his nebulized medication therapy twice a day. They have also continued to work with their CF dietitian to help Cole get as many calories a day into his diet. In order to be successful, Cole receives a nightly feeding tube treatment. He also visits his Speech therapist at MUSC twice a week to work on chewing and swallowing foods. Our goal is to ensure that Cole and all those who have Cystic Fibrosis can continue to have normal lives without being held back by this life-threatening disorder. We will continue to raise awareness and educate our community on what life with Cystic Fibrosis is like, and how we can support the foundations ultimate goal, to find a cure.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.