Save the date - May 19th at Moonlight Beach for Cruisin' for Clare's 9th Annual Great Strides walk.
Dear Friends and Family,
It's that time of year again...to walk for awareness of Cystic Fibrosis. Please consider joining us on May 19th at 10am (check in 8:30am) for our 9th Great strides walk. This year, the walk has returned to Moonlight Beach! Whether you plan to walk in tennies or flip flops, we'll see you there!
For those of you new to the walk, our family walks to support Cystic Fibrosis because our daughter Clare was diagnosed with CF at birth. Our boys do not have the disease, however, many families have more than one child with CF. We walk for Clare, and all the families working daily to keep their CFers healthy.
For our family, this is a momentous year. The fundraising we have done for the CF Foundation has made it possible for a new triple combination drug therapy showing incredible results to be available by the 1st half of 2020. Once the FDA approves this drug for adults, the pediatric drug will hopefully follow in 6 short months. In addition to this drug hopeful, the CF Foundation also has additional anti-inflammatory therapies and other options to assist CF patients. Our personal Great Strides walks have raised over $150,000 in 9 years, and 90% of those funds have gone to research.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!