Save the date - May 19th at Moonlight Beach for Cruisin' for Clare's 9th Annual Great Strides walk.
Dear Friends and Family,
It's that time of year again...to walk for awareness of Cystic Fibrosis. Please consider joining us on May 19th at 10am (check in 8:30am) for our 9th Great strides walk. This year, the walk has returned to Moonlight Beach! Whether you plan to walk in tennies or flip flops, we’ll see you there!
For those of you new to the walk, our family walks to support Cystic Fibrosis because our daughter Clare was diagnosed with CF at birth. Our boys do not have the disease, however, many families have more than one child with CF. We walk for Clare, and all the families working daily to keep their CF’ers healthy.
Our Great Strides team has raised $150,000 over the 9 years we have been walking thanks to you. For our family, this is a momentous year. The fundraising we have done for the CF Foundation has directly supported the research & made it possible for a new triple combination drug therapy showing incredible results to be available by the 1st half of 2020. We ask our friends and family to support us again this year with a donation to our Great Strides walk, in hopes that by the end of 2020, Clare will have a new option for her CF preventative treatments.
For those of you that do not get to see Clare every day, she is a superstar! She is managing her health as if she were an adult. She knows how many enzymes to take before her meals and she can list all of the medications she uses and why she uses them. She takes an hour out of her day to manage her health. She does two vest treatments a day, nebulizer treatments, and swallows 25+ pills on a daily basis. She is BRAVE during her blood draws & tummy aches. CF doesn’t slow Clare down. She has only missed two weeks from school due to her health. Thanks to all of this and all of you, Clare makes living with CF feel normal.
Clare’s passions include spending time with her friends, sleepovers, playing the Ukelele, art of any kind, baking, watching baking shows, Girl Scouts, reading, playing sports, and taking our dog Baxter to the beach. She is lovable and spirtited all in one. She makes breakfast in bed for us on random mornings. The breakfast always includes coffee, m & ms, and a note. She is loving and Loved.
Please consider donating to Cystic Fibrosis in 2019!