My Great Strides Story
My story with Cystic Fibrosis (CF) started shortly after Aug. 30 2013 when our son Riley was born. My husband Eric and I had driven 30 hours straight across the country to get there for his birth and when they first put him in my arms when he was 10 minutes old there is nothing that can describe the love that filled my heart, it was as if I was finally whole. A few days later we learned that Riley had Cystic Fibrosis (CF). Doctors and Social workers questioned if we would move forward with his adoption, there was no question for us, he was our son! We know that God has an amazing plan for us as a family. Riley has brought so much joy and happiness to our lives, that is just one of the reasons why we fight so hard to raise money to find a cure, for him and all those other warriors like him fighting CF.
Riley went three and a half years without having to be hospitalized but in Jan. 2017 he got sick and just couldn’t get better this time. In February 2017 he was admitted for his first hospitalization. He had his first operation to place a PICC line for IV antibiotics and was in the hospital for 2 weeks. Riley also cultured ‘Pseudomonas’, a bad bacteria, in his lungs so in addition to his daily chest therapy treatments he also needed a special nebulizer treatment to fight off the Pseudomonas bacteria, this added 30-40 minutes to two of the treatments that he does everyday. He did those through December when we got word on Christmas Day that he was clear of the Pseudomonas (for now). It was an awesome Christmas present, taking at least an hour and a half to two hours of treatments off our daily regimen.
Even with those extra nebulizer treatments removed, he still has been on an increased treatment regimen of 3-6 treatments a day instead of just 2 per day because, in typical 4 year old Riley fashion he licked a handrail at a Charger’s football game on Oct. 1 and got sick the very next day. We have pretty much been on and increased treatment regimen since then with only about 20-25 ‘healthy 2 treatment days' thrown in here and there.
He looks and acts pretty great when we are out an about but the coughing and bringing stuff up and difficulty at night are among the things you don’t see. He is a true little warrior but he needs help, YOUR HELP. He needs a cure and you can help make that cure closer to being found by joining our team and/or making a donation to our Great Strides team.
In order to help Riley and other people with CF we need advances in treatment. That is why I am raising money for the CF Foundation, they do so much for the fight, families and those living with CF, please help me make a difference.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Our walk this year will be at NTC Park at Liberty Station on Saturday June 2nd, so please come out and join us!
Please support me (and Riley)!
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me?
If you can’t walk with us then please support me (and Riley) by making a donation to my Great Strides fundraising campaign today!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.