Faith is now a TEENAGER and she's hoping to continue walking as a team! In all honesty, when she was born and we received her CF diagnosis, I expected our second home to be the hospital, and for SO many CFers that rings all too true. Thanks to the medications she is on, researched and funded by the CF Foundation, as well as her diligence with treatments....Faith has NEVER been hospitalized (yet)! We are incredibly grateful to people like YOU who have donated, walked, prayed and supported us throughout the years!
2019 will be our FIFTEENTH year walking with Faith as Team FaithFull! We have raised well over $140,000 in that time, made many new friends, helped get CF on the newborn screening test in CA and the newest exciting news is that a second, BETTER combo drug that is undergoing trials for Faith's specific mutation has recently been showing AMAZING improvement in CFers and will hopefully be approved by the FDA this year! That's HUGE news, but it takes $$$ to happen...the investments in the right companies, research, trials, medications, supporting clinics, etc !!!
I fundraise and spread awareness for my daughter Faith (and the thousands of others who battle CF), so she can have the chance to live a HEALTHY, hopefully LONG life. It is her right. We all have struggles, but I have watched her over the years take CF in stride, fighting it when she needs to and being patient in tolerating it all the other days of her life. She is truly an inspiration, an angel and my hero. I strive to see and live life more like her. She's hoping to make a new video on her own this year, but you can watch her video from 2016!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a team member in person or online, simply click on the "Join our team" button!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.