Our passion is bigger than ever as we push for a CF Cure! We are so grateful for the support of each and every one of you! In the past 5 years you have shared our story, walked beside us and donated! Last year alone we nearly raised $9K!
Will you join Logan and support our mission to make medical history again this year?
All we need of you is to click on the "Join our Team" button. By becoming a member of our team, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.
Details you need to know about this year's walk!
We HIGHLY encourage you to register each person attending online by Thursday evening. This will save you valuable time Saturday morning and can ensure there will be enough breakfast snacks and lunch for all.
Registration: 8:30 am Program: 9:30 am Walk Starts promptly: 10:00 am Post walk Activities & Lunch: 10:45 am-1 pm
After the walk, everyone can enjoy some pizza lunch! We will have games and special Star Wars activities after the walk, so feel free to bring a blanket, hang out, and enjoy the beautiful 78 degree weather!
Noodles & Co. mac & cheese
Red Robin Raspberry Lemonade
Top Golf putting game
Fire truck and local firefighters
Mascots & Characters (in the morning)
How to find us at the walk? Team Love for Logan has shirts for sale (email Melissa Smith for more info) or teammates are encouraged to wear a light blue shirt. Logan will be wearing his Salty hat and purple "I am a fighter" shirt. We will bring a number of picnic blankets and blue star balloons to mark out our pre/post walk meet up location. You can also text/call Melissa Smith @ 916-718-1907.
Parking Since the walk is located downtown, please note that you will have to pay for metered parking. The spots WILL be monitored, so make sure to pay when you park. Crocker park has a small lot next to it in addition to street parking. There is also garage parking available at 300 Capitol Mall which is located across the street from Crocker Park.
A little more about Logan and CF...
Under it all Logan bravely fights Cystic Fibrosis…every day, 365 days a year. There is no holiday for the average 3 breathing treatments, 2 sinus rinses, 25 enzymes/pills every day. We are always “on guard” for the simple cough, sneeze or runny nose! Each cold, virus, infection calls for immediate action and increased treatments as each “simple” illness creates permanent scarring on his lungs.
We are amazed as we watch who Logan is growing to be! He is a fighter and a lover of all things space! This year Logan bravely started Kindergarten, proudly shows off that he swallows 5 large enzymes capsules at once and is taking the lead at doing his own breathing treatments. He shows us he can and WILL do it all! We have been very fortunate that overall Logan has been healthy and we count each day of good health as a victory! To learn more about our daily routine, watch Logan's video from last year: https://youtu.be/eDKRqCqHy58
How does every donation help?
Research dollars are critical to finding and funding a cure for CF. The Foundation, which receives no federal funding, is on the verge of real breakthroughs!
CF Foundation President and CEO Dr. Preston Campbell stated, “It's the greatest story in medicine today!"
Logan started taking the new modifier drug Orkambi this past fall. We have seen improvement in his sinus disease and GI but there is more hope on the horizon. There are two different combo drugs that could significantly help Logan awaiting FDA approval! If all goes well Logan could benefit from one of these drugs in the coming years. To learn more about this drug and possibly more impactful research advancements, click here: http://www.cff.org/treatments/Pipeline/
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. The research dollars raised from all of the moms, dads, families and friends before us have funded the breakthroughs that Logan is benefiting from today. 90+ cents of every dollar goes to research! Your gift is 100-percent tax deductible.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.