Please support/join our Team Princess Warrior fundraising event and help add more tomorrows!! LACE UP. WALK. CURE CYSTIC FIBROSIS.
Meet Jadzia Ruth ~
Jadzia is our firece Princess Warrior. She's smart and funny. Loves to sing (especially songs from Frozen and Moana), she runs, jumps, climbs, loves sparkles and fluffy skirts! She is sweet and caring. She's a fighter! She is 5 years old and continues to learn her ABC's, numbers, colors, etc. She loves her big brother and adores her baby sister (and does a great job watching out for her). She suffers from Cystic Fibrosis, commonly known as CF. She has CF, but CF does not define her and she fights it every day to keep it that way.
We want nothing more than for herself and her friends to get a cure for CF. CF is a genetic disease affecting her entire body, especially her lungs and digestive system. She sets aside about 1 hour a day doing breathing treatments and nebs to help break down the thick mucus that builds up in her body. She takes pills and other medications to help her body absorb nutrients from food and to stay healthy.
Our friends and family are joining together to fight CF and find a cure. The Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF through research and ground breaking new medications. The CF foundation is greatly improving Jadzia's health, on account of advances in medicine and therapies.
Your help is needed now more than ever to ensure that a cure is found sooner - rather than later. We want Jadzia to live life to the fullest, to be able to graduate highschool, to get married, to see her own grandchildren someday. There are potential life extending drugs that would not be possible without the funding provided by the Cystic Fibrosis Foundation. Help us to continue to take steps towards a cure. To learn more about CF and the CF Foundation, please visit www.cff.org.
Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDE
How can I do that??? See a few options below!
1) Donate to one of the Team Members (ANY dollar amount makes a difference)
2) Become a member of our team and walk with us on Saturday, May 4th! Spread awareness and raise funds. Earn some prizes, eat yummy foods, play games, etc. Having family and friends walk with us means more than you know. ♥
The Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
If you want to become a member of our team, all you need to do is click on the "Join our Team" button. From there you can make a donation (every little dollar helps!) and start your fundraising.
3) Sign up and become a virtual walker (meaning you don't have to be there physically at the walk), Spread awareness and help raise funds for our whole team!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers and our daughter Jadzia who struggle every day just to breathe. We walk for them.
**If you cannot join our team physically, you can join us virtually!
Please also watch this great video that helps explain what Cystic Fibrosis is.
(highlight, copy and paste the url)
For those joining our walk, get your purple and camo gear on and join Team Princess Warrior on Saturday, May 4th!!!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.