As many of you know, my twin Granddaughters Etta & Ella, who were born 2 months early, were diagnosed with Cystic Fibrosis within weeks of being born. There is no cure for this genetic disease. They are subjected to twice daily breathing treatments and lung compressions in an attempt to keep their lungs from rapid deterioration. They must injest several pills containing the digestive enzyme called Creon, each and every time they are fed. They are also force fed through a nasal gastric tube when they are not in the mood to eat. On Friday of this week they are scheduled for surgery to insert a more permanant feeding tube through their bellys. So not only will they be twin cysters they will also be twim tubies! These babies are full of love and joy. Little Etta, the smaller cyster, will often sing while having her Tobramycin treatments for a lung infection that developed in both girls when they were only 2 months old. These babies are so happy despite their challenges. I am convinced this is due to the love and dedication they recieve from their parents. They love being read to and they love to play with their toys. Please join me in helping to raise funding for cystic fibrosis research by making a small donation via my page.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Real progress has been for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.