Hi! My name is Jadzia Ruth,
I love to sing (songs from Frozen and Moana especially!), run, dance, jump, climb, and have fun. Oh and I love sparkles and fluffy skirts and dirt and bugs! I am pretty smart (according to my mommy and daddy) and have been learning my ABC's, numbers, colors, etc. I am a fighter! I am 5 years old but I know I can help change lives even at a young age. I love my big brother and adore my baby sister. I like to play action figures with my brother and play starwars. I play dolls with my baby sister and keep an eye on her sometimes. My brother helps me get my Chest Physical Therapy set up each morning (and he sometimes helps at night too) to do my airway clearance. This helps break up the thick mucus thats inside my body. I have Cystic Fibrosis, commonly known as CF. I have CF, but CF does not define me and I fight it every day to keep it that way.
I want nothing more than for myself and for my friends to get a cure for CF. CF is a genetic disease affecting my entire body, especially my lungs and digestive system. I set aside about 1 hour a day doing breathing treatments and nebs. I take pills and other medications to help my body absorb nutrients from food and to stay healthy.
Our friends and family are joining together to fight CF and find a cure. The Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF through research and ground breaking new medications. The CF foundation is greatly improving my health, on account of advances in medicine and therapies.
Your help is needed now more than ever to ensure that a cure is found sooner - rather than later. I want to live life to the fullest, to be able to graduate highschool, to get married, to see my own grandchildren someday. There are potential life extending drugs that would not be possible without the funding provided by the Cystic Fibrosis Foundation. Help us to continue to take steps towards a cure. To learn more about CF and the CF Foundation, visit www.cff.org.
Please also watch this great video that helps explain what Cystic Fibrosis is.
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Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
For those joining our walk, get your purple and camo gear on and join Team Princess Warrior on
Saturday, May 4th!!!
See you there!!
Thank you, Thank you, Thank you and God Bless!!