Dear Friends & Family,
The 21st Annual Hornell Great Strides for Cystic Fibrosis Walk will take place on Saturday, June 8th. Registration will begin at the Steuben Trust Company at 11:00am with the walk beginning at noon.
Thanks to people like you, advances in Cystic Fibrosis research are occurring faster than we would have ever anticipated. Most recently, Vertex announced that it plans to submit a new drug application to the U.S. Food and Drug Administration in 2019 for its CFTR modulator VX-445 combined with tezacaftor/ivacaftor. Approval of the triple combination drug could, over time, expand medications that treat the underlying cause of CF in more than 90% of those with CF.
Zan is now 3.5 years post transplant and doing well! She married her high school sweetheart this past year. Carley is also doing well, keeping up with her many treatments and being hospitalized only minimally for her “tune-ups”. We work together in the Pediatric Cardiac Care Center at Golisano Children's Hospital.
While their health is relatively stable and we have made many great advances thanks to people like you, the fight is not over, and we need to continue to explore all promising avenues of research, including those that are pioneering new technologies to repair the defective CF gene, so that one day CF can stand for Cure Found. Won’t you please join my team "Mike Palmer Plumbing Heating and Air Conditioning"? It’s easy! If you would rather just sponsor my team, please help my friends and others like them in the fight against CF by donating online.
Let’s make this the biggest and best Hornell Great Strides Walk yet! Thank you so much for your help in making CF stand for Cure Found.