Cystic Fibrosis. Two words that the only memory I have of ever hearing was a conversation with a classmate in high school about his older brother who has Cystic Fibrosis. That was until September 6, 2013 when I was told “I’m sorry but your son has cystic fibrosis.
What is Cystic Fibrosis? I could give you at least five pages on what cystic fibrosis is but for sanity and time saving purposes I will simplify it. Cystic Fibrosis or CF is a genetic, life shortening, multi-organ affecting (mainly lungs and digestive system) disease. About 30,000 Americans have CF, and 1 in 20 people are carriers. The average life expectancy for someone with CF is 41. However, in the form that Brody has - Double Delta F508 - that average life expectancy is less.
Now onto Brody. Brody is my four year old son. Brody has red hair (closer to a shade of orange) and pale blue eyes. He has a love for trains and is full of fun quirky things to say. Brody also has cystic fibrosis. This disease has caused the top of Brody’s right lung to collapse, an issue that has led to three hospital admissions this year alone. If we can not keep his lung open then Brody is facing having part of his lung removed. Our family has been forced to move due to this disease so we could be in a safer home for Brody.
Since day one of Brody’s diagnosis I have promised him that I would be there for him, be strong for him, advocate for him, to do whatever is in my power for him. This leads me to the point of this letter. My name is Renee Riser-Blackburn and I am a CF mom.
As I stated earlier there is currently no cure for cystic fibrosis. Research on cystic fibrosis gets very limited funding so yearly my family participates in Great Strides. Great Strides is a 5k walk to help raise awareness and funds for Cystic Fibrosis. All proceeds go to the Cystic Fibrosis Foundation. Currently our team, Brody Strong, is looking for sponsors and walkers. The walk is May 13th at Esther Short Park in Vancouver, WA. Our goal this year, along with raising funds to aid in research for treatments and a cure of the disease, is to have as big of a team as we can get to show Brody how much support and love he has. He has had a tough year and I would love to show him all the support that he has in his fight.
I appreciate you taking time out of your day to read this. It is a cause very near and dear to my heart as I watch the fight my son has to have daily. My hope is that one day soon there will be a cure. We look forward to seeing our team Saturday May 13th at Esther Short Park in Vancouver.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.