Hi my name is Erin Leger and I will be 12 years old and I have Cystic Fibrosis. To tell you a little about me, I was diagnosed with Cystic Fibrosis when I was 2 weeks old. I have been very fortunate that I have been relatively healthy, thanks to the support of the CF center, where I go for my quarterly check-ups at Dartmouth Hitchcock Chad. I have the best team of doctors and nurses, who make sure I am doing the right therapies to make sure I stay healthy. Due to my lung function, I have to take abueterol and pulmozyne. The great news is this june i get to go on symbeko, which may slow the progression of the disease.
I am a 6th grader in Londonderry. I love school and all my friends and teachers who have over these last 6 years, watched me grow into a little spitfire. I started playing fiels hockey and our team won the championship!!! I am very lucky to have my brother Brent in the same school again, and as much as we may fight because we are so close in age, I know he always keeps an eye out for me. When I am not in school, I stay very active by playing soccer in the spring
I have been told by my doctors the more active I am the healthier I will stay.
We as a family have been very involved with the Cystic Fibrosis foundation since I was born and have walked in many walks with family and friends in the hopes of bringing awareness so that one day there will be a cure for me and other children inflicted with this deaseas. What many people don't know, is that there are only approximately 30,000 Americans living with cystic fibrosis, this is considered a rare genetic disease. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk with them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. The median age is now 38, which is great but lives are still being cut way too short. I have many dreams as a 12 year old, and my Mom and Dad tell me, I WILL live to experience all those dreams. Even though there still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people like me living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today! The reason there have been so many advancements in the treatment of CF is because of generous people like you. Approximately .90cents of every Dollar donated to the Cystic Fibrosis Foundation goes to Research, Care and Education.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Come join me and many other CF Supporters on Saturday May 20th at Derryfield Park in Manchester NH. registration is at 9am the walk starts at 10am
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible. All you have to do is click the donate button. If online donating is something you are not comfortable you can write out a check and make it payable to the Cystic Fibrosis Foundation and put my team name Erins Shamrocks.
Thank you in advance for donating and maybe one day CF will stand for Cure Found!!!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.