Here's to 2019 keeping us happy, healthy, and hopeful. I struggle writing this each year wanting to keep you all informed as you have so graciously donated your time, money, love and support every year. If you see me on social media I try to keep things positive celebrating the kids accomplishments and occasionally sharing some CF related information to keep the education rolling forward.
What I don't share a lot of is the toll CF takes on our family both healthwise and emotionally. Hazel has had a rough year starting the end of December with CF related DIOS (distal intestinal obstruction syndrome). Yet another consequence of this disease it's progressive and each passing year we see new things fight new battles. We just ended our April break with yet another obstruction. Edgar unfortunately got influenza in Febuary leading to an exacerbation and a whole month of increased airway clearance 4x/day, antibiotics, and a very exhausted boy. We take each day and each moment as they come enjoy the great ones and hold onto eachother through the hard ones. We are so thankful for each one of you who rally around us to lift us up.
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