Our Cycle for Life Story
Our grandson, Buster, was born on May 3, 2013. To us, he is perfect. Despite that perfection, he has Cystic Fibrosis, a terrible genetic disease. That means he cannot digest his food like you and us. Any infection is very serious for him, because his lungs and other organs fill with a thick, sticky mucus that could eventually prevent them from working altogether. He takes several medications, breathing treatments and chest physiotherapy, every day. He probably will for the rest of his life.
Great things are happening in the CF research world, since the gene that causes CF was identified in 1989. When we were young, kids with CF did not live long enough to begin elementary school. When Buster was born, people with CF were living to an average of 37 years and now are living to an average of 41 years. Doctors say that Buster's life expectancy could be 57 years. Thanks to you, we are planning on far more than that. There is genetic therapy being developed, and there are wonder drugs out there, and more in development, largely due to the work of the Cystic Fibrosis Foundation. But there are no wonder drugs yet for Buster. And the wonder drugs that are being used and in development are incredibly expensive.
That's where we come in, and hopefully you too. We will ride in support of Buster. We will ride in support of the Cystic Fibrosis Foundation, which funds and supports the development of those drugs and treatments. And we ride to give hope to tens of thousands of children and adults who live every day with this disease. To give them more tomorrows. We all want more tomorrows, don't we? You can help give Buster, and thousands of people with CF, more tomorrows, by donating, riding, encouraging and supporting.
Since 2013, over two hundred fifty incredibly generous and supportive "Buster's Buddies" have raised $270,000.00. Now, "Buster's Buddies" are going to ride in the Cycle for Life on June 17. Please join or support us.
Dennis and Suzanne