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Joyce's Page

Saratoga Springs CF Cycle for Life

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Raised: $366.69

Goal: $1,000.00

Welcome to my Page

  • Team leader Great Strides Walk
  • Hospital Stay

 

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, co-workers and my granddaughter, Sydney, who struggle every day just to breathe .Cystic Fibrosis is a life-threatening genetic disease that ravages the lungs and digestive system.

 

 

Sydney refuses to let CF define her or hold her back.    It takes a person with CF 5 times the energy to complete the most simple task than for a person without CF.  But Sydney lives life with a zest that few of us ever experience.   Sydney just celebrated her 19th birthday!  While this year has been a challenging one for Sydney with many hospitalizations and declining lung function,  she continues to rise above this disease and pursue her goals.  


I ride for my inspiring, stubborn, beautiful granddaughter. I ride for the day when she doesn’t have an appointment with a different specialist every week. I ride for the day when she isn’t undergoing constant testing. I ride for the day when she isn’t taking dozens of pills and drugs. I ride for the day when she has free time and isn’t locked into a daily regimen of therapy. I ride for the day when she can breathe free and easy. I ride for a cure..
  

 

 

   The Cystic Fibrosis Foundations is the world’s leader in the search for a cure and is dedicated to attacking CF from every angle.  Its focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF and—ultimately—to find a cure.  By pursuing a wide range of promising strategies, the Foundation and its nonprofit drug discovery and development affiliate, Cystic Fibrosis Foundation Therapeutics Inc. (CFFT), have built a robust pipeline of approved and potential therapies that tackle CF from all angles, including drugs targeting the underlying genetic cause of the disease. Nearly every CF drug available today was made possible because of CF Foundation or CFFT support.

  

The CF Cycle for Life is a unique event that empowers cyclists to take action and demonstrate their fight in finding a cure for cystic fibrosis in a tangible, emotional and powerful way. 

 

By cycling, I am helping add tomorrows for Sydney and all people living with cystic fibrosis.  Will you join me? Support me by  making a donation to my CF Cycle for Life fundraising campaign today!

 

Every dollar makes a difference.  YOU make a difference.

 

 Please support me! 

This year my fundraising goal is $1000.  Help me reach my goal!  Donate today.

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