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There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, co-workers and my granddaughter, Sydney, who struggle every day just to breathe .Cystic Fibrosis is a life-threatening genetic disease that ravages the lungs and digestive system.
Sydney refuses to let CF define her or hold her back. This fall she will be attending college at SUNY Oswego. It takes a person with CF 5 times the energy to complete the most simple task than for a person without CF. But Sydney lives life with a zest that few of us ever experience. She keeps up with her school work, races on the high school ski team, is a ski instructor at Gore Mountain on the weekends and performs in the high school and community musicals. She has been given the gift of voice and she pushes the limits to be able to follow her passion of performing and singing in musicals. Cystic fibrosis is a progressive disease. As Sydney gets older her medications increase and her therapy time every day increases. Lung function decreases because the excessive mucous in the lungs becomes a breeding ground for bacteria.
On June 23 Sydney walked across the stage and received her high school diploma. Beautiful, poised and smiling she looked like any other healthy young woman. But for three days she had been in bed fighting a fever and infection that she knew meant it was time again to go in the hospital for IV meds. The message on her cap says it all “A little CF can’t stop me”. Nothing can stop her. She attended graduation and celebrated on Saturday with family and friends. On Sunday morning she was admitted to Albany Med to have her port accessed for another round of IV antibiotics.
I ride for my inspiring, stubborn, beautiful granddaughter. I ride for the day when she doesn’t have an appointment with a different specialist every week. I ride for the day when she isn’t undergoing constant testing. I ride for the day when she isn’t taking dozens of pills and drugs. I ride for the day when she has free time and isn’t locked into a daily regimen of therapy. I ride for the day when she can breathe free and easy. I ride for a cure..
The Cystic Fibrosis Foundations is the world’s leader in the search for a cure and is dedicated to attacking CF from every angle. Its focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF and—ultimately—to find a cure. By pursuing a wide range of promising strategies, the Foundation and its nonprofit drug discovery and development affiliate, Cystic Fibrosis Foundation Therapeutics Inc. (CFFT), have built a robust pipeline of approved and potential therapies that tackle CF from all angles, including drugs targeting the underlying genetic cause of the disease. Nearly every CF drug available today was made possible because of CF Foundation or CFFT support.
The CF Cycle for Life is a unique event that empowers cyclists to take action and demonstrate their fight in finding a cure for cystic fibrosis in a tangible, emotional and powerful way.
By cycling, I am helping add tomorrows for Sydney and all people living with cystic fibrosis. Will you join me? Support me by riding with me or by making a donation to my CF Cycle for Life fundraising campaign today!
Every dollar makes a difference. YOU make a difference.
Please support me!
This year my fundraising goal is $7000. Help me reach my goal! Donate today.