Our Cycle for Life Story
Thank you for visiting the “Fearfully and Wonderfully” team fundraising page!! Our team rides in honor and support of Abigail McLain!
This will be Team Fearfully & Wonderfully’s 4th Cystic Fibrosis Foundation Cycle for Life Ride!! By the kindness of a dear friend, our first team was organized when Abigail was just 5 months old. She had only been diagnosed with Cystic Fibrosis a short 4 months before. At the time, we were just starting to learn about the disease and we were totally new to the Cystic Fibrosis Foundation.
During the weeks we were waiting for her test results, we held to the promise from the Psalms that Abigail was “fearfully and wonderfully made” by God. Regardless of her diagnosis, we knew that God had made Abigail exactly the way He intended and that He has a plan for her life. The Lord has given us a peace beyond our understanding, and a great hope for her future!
Since that time, we have learned a TON about this disease, both from a clinical and personal perspective. We make quarterly clinic visits to Cooks’ Children’s Hospital in Fort Worth, we do breathing treatments and chest physical therapy every day, twice a day, (and more when she’s sick) even on birthdays and Christmas! We do it because following the guidelines from her CF Care team are essential to minimizing lung damage and giving her the best possible outcome.
As we have learned about the disease and the specific care that Abigail needs, we’ve also learned about the amazing foundation that was started in the 1950s by a small group of families that refused to accept that there was little that could be done for their kids. At that time, when a child was diagnosed with Cystic Fibrosis, families were told that the life-expectancy for their child was five years. Five years old! Can you imagine?? Carly is almost 6 now. Those families were told to love their babies now because they likely wouldn’t go to Kindergarten.
Thanks to the dedication of those families and thousands others like them, the life-expectancy for someone living with Cystic Fibrosis is now around 40. Praise God! How incredible that the money they have raised has supported scientific research to make such significant strides! It is deservingly known as “the best story in medicine!”
We have wholeheartedly thrown ourselves into involvement and fundraising with the CF Foundation! We have found support and friendship with other friends and families fighting alongside of us for a CURE, and a hope that our children's lives might be free of lengthy treatments, medications, and the ever decreasing lung-function which will ultimately limit their life.
The Cystic Fibrosis Foundation can be trusted! They are a vocal and mighty group that represents the 40,000 people in the US/70,000 worldwide living with CF. The board has multiple renowned physicians who have dedicated their careers to finding a cure for CF. Their knowledge and resolve to cure this disease fills me with gratitude. And while the strides have been tremendous, there is STILL MUCH WORK TO BE DONE!!
In March, we were able to attend the CF Foundation Volunteer Leadership Conference in San Diego. In addition to hearing countless stories of both heartache and hope in the CF Community, we were also able to hear about how the Foundation plans to allocate dollars to research that could literally save Abigail’s life. I am confident in this foundation and the way they steward the gifts given in honor and memory of people with Cystic Fibrosis. We would be humbled and grateful for you to JOIN OUR EFFORT in finding a cure by making a monetary donation to our team
To read more about Abigail and some of the specific challenges she faces, jump on over to Jordan’s individual page and MAKE A DONATION!!
We are committed UNTIL IT’S DONE!!
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