Welcome to my Page
Cystic fibrosis is a rare, genetic disease found in about 30,000 people in the U.S. causing persistent lung infections and limiting the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers --all struggling each day just to breathe and live normal, healthy lives.
My nephew, Jeff Blank, was diagnosed with cystic fibrosis at 18 months old.
Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are living into their forties. Because of tremendous advancements in research, treatments, and the support of countless donors, many people with CF are living long enough to realize their dreams of attending college, pursuing careers, getting married, and having kids. Jeff is one of the lucky few to have done just that, but his fight is not over.
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in CF Cycle for Life, I ride to help add tomorrows to the lives of all people living with cystic fibrosis today.
I ride so the CF community can have access to groundbreaking treatments.
I ride because the scientific community is on the cusp of receiving FDA approval that could help 90% of people with CF.
I ride because 90% is not enough and we need a cure.
I ride so Jeff can see his son/our 2-year-old grandnephew grow up.
Please support my family and everyone impacted by cystic fibrosis by donating to my CF Cycle for Life fundraising campaign today. No amount is too small. Thank you!