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Willie's Page

St. Louis CF Cycle for Life 2018

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Raised: $875.00

Goal: $2,000.00

Welcome to my Page

  • Aleks Yay
  • Aleks lion

Hello everyone. As many of you know, my fourth granddaughter, Aleksandria Harper Flowers Courtney, was born with Cystic Fibrosis and underwent abdominal surgery within the first 12 hours of her life. She is now 26 months old and this last year has had its challenges but she’s made so much progress. After her surgery this past December to have a G-tube placed, she is now getting more of the nutrition she needs and gaining strength to help with her many hours of physical therapy with her new leg braces and stander. She’s still working hard to do simple things like roll over, crawl, stand, or walk. She’s making progress but it’s at Aleks’ own little pace. Her regular care consists of many doctors’ appointments, PT and stringent home care routine. My daughter, Brittany, and son-in-law, Justin, work so hard every day to care for Aleks and her 4 year old sister Juniper. Juniper has been a wonderful big sister and helps out whenever she can. I hope someday they will experience the overwhelming joy that would encompass so many families when a cure is found. They have been battling so hard and have given up so much to be able to see this happy little girl learn how to eat and speak. Aleks is very witty and regularly has everyone laughing at some of the things she says. She is truly a joy to be around!
I will be riding 25 miles in the CF Cycle for Life campaign to raise awareness of what people with CF go through and raise funds to help find the cure. I am not a cyclist so this is going to be a challenge for me.
I’m writing this to thank every one of you for being in my life and understanding what my family has gone through this last couple of years. If you would like to join our fight in any way I would be forever grateful, whether it’s riding with me, helping with fundraising, donating or just a kind word of encouragement. I appreciate anything you can provide. I ride for the opportunity to see the cure that is so close to happening.
CF is a rare genetic disorder that thousands of babies are born with every year. Science and research has prolonged life expectancy and the quality of life for these people but they’re still working on a cure. Our hope is that doctors and scientists find a cure for this terrible disease in the next decade or sooner to save our Aleks and all others with CF. There are approximately 30,000 people living in the United States with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I ride for them, and hope that you will support me in my efforts. Although tremendous progress has been made in the search for a permanent cure for cystic fibrosis, the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By cycling, I am helping add tomorrows to the lives of all people living with cystic fibrosis.
Ride Today. Add Tomorrows.

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