Login

Willie's Page

St. Louis CF Cycle for Life 2017

Learn more about this event.

Fundraising Progress

0
10
20
30
40
50
60
70
80
90
100
110+
Donate to Me

Raised: $3,500.00

Goal: $4,000.00

Welcome to my Page

  • Aleks Standing
  • Aleks & June

Hello everyone. Fourteen months ago my fourth granddaughter, Aleksandria Harper Flowers Courtney, was delicately brought into this world. At my daughter’s 20 week ultrasound they discovered a marker for a genetic disorder which later was confirmed as Cystic Fibrosis. Aleks was born four weeks early and had to have abdominal surgery within the first 12 hours of her life. She spent two months in the NICU battling for her life. She has been through two other surgeries since then from complications related to this disease. All of these things have impaired her ability to do simple things like roll over, crawl, stand, speak or walk. She’s making progress but it’s at Aleks’ own little pace. Her regular care consists of many doctors’ appointments, physical therapy and a stringent home care routine. My daughter, Brittany and son-in-law, Justin work so hard every day to care for Aleks and her 3 year old sister Juniper. Juniper has been a wonderful big sister and helps out whenever she can. I am so proud that they have been taking care of each other through these difficult days.

CF is a rare genetic disorder that thousands of babies are born with every year. Science and research has prolonged life expectancy and the quality of life for these people but they’re still working on a cure. Our hope is that doctors and scientists find a cure for this terrible disease in the next decade or sooner to save our Aleks and all others with CF.

I will be riding 50 miles in the CF Cycle for Life campaign to raise awareness of what people with CF go through and raise funds to help find the cure. I am not a cyclist so this is going to be a challenge for me.
I’m writing this to thank every one of you for being in my life and understanding what my family has gone through this last year and a half. If you would like to join our fight in any way I would be forever grateful, whether it’s riding with me, helping with fundraising, donating or just a kind word of encouragement. I appreciate anything you can provide. I ride for the opportunity to see the cure that is so close to happening.

There are approximately 30,000 people living in the United States with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I ride for them, and hope that you will support me in my efforts. 

Although tremendous progress has been made in the search for a permanent cure for cystic fibrosis, the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By cycling, I am helping add tomorrows to the lives of all people living with cystic fibrosis.

Ride Today. Add Tomorrows.

 

 

Comments

My Achievements

Ride With Me!

Register for This Ride