Justin's Page

St. Louis CF Cycle for Life 2018

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Raised: $1,090.00

Goal: $2,500.00

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  • She's a fighter!
  • Happy Girls!

This is my third year Riding for Life for my daughter Aleks. 

Before Aleks had even taken her first breath, my wife, Brittany, and I were told that Aleks would likely be born with Cystic Fibrosis.  CF is a condition that causes thick, sticky mucus resulting in sever lung and digestive complications.  Aleks had to have abdominal surgery within the first 12 hours of her life and then spent two months in the NICU.  Despite a rocky beginning, Aleks is the happiest baby you could meet.  She loves her teething ring, having her neck tickled, hugs from her big sister, and life in general.  At less than a year old, she is an inspiration and one the brightest spots in my day.

Much of the research and advancement in the treatment of CF has only been made possible by the Cystic Fibrosis Foundation.  From the accredited CF Center that Aleks sees her team of doctors and CF specialists at, to the CF Family Education Day where Brittany and I were able to meet other CF parents and hear leaders in fields of CF research and treatment, the CF Foundation has provided us with an unbelievable support network.  Most importantly, the CFF has given us hope that a cure will be found within Aleks’s lifetime.

Much of the research and drug development for Cystic Fibrosis is funded, and even directly participated in, by the CFF.  This is why your contributions are so important.  Your donation ensures that new drugs, like CFTR modulators which treat the root cause of the sticky mucus, are being researched and developed.

I will riding the 100 mile route again this year.  Please join me in supporting the Cystic Fibrosis Foundation and finding a cure for this disease.

With love and determination I will ride for life.


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