Justin's Page

St. Louis CF Cycle for Life 2019

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Fundraising Progress

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Raised: $320.00

Goal: $2,500.00

Welcome to my Page

  • She's a fighter!
  • Happy Girls!

“A journey of a thousand miles begins with a single step.”

Aleks’s journey began before she was born. She developed a condition in utero that was a telltale sign of Cystic Fibrosis. When she finally came into the world, she was taken into surgery the same day to address the condition. From there, it was two long months in the NICU. Her first milestone came in July of 2016 when she finally came home.
Since the rocky start to her journey, she has endured multiple surgeries, endless doctors appointments, and all of the trials of being a two year old (almost three!) just trying to learn about her world. She’s had a lot of help along the way, from her sister Juniper, her Aunt Terri, Grammy, Grampy, an army of doctors and therapists, and friends and family like you. That’s no small accomplishment either!

Together you all have helped raise over $5000 in the past three years! This has helped us get closer to a cure. Just in the past year we’ve seen multiple new CFTR modulators come to trial, existing therapies expanded to include a wider patient base, and incredible advances in gene therapy that will someday become the cure we continue to work for. The CF Foundation is critical in these advances and your generosity has made a direct impact.

Please join me again this year as we try to provide every advantage to Aleks on her journey. A donation of any size makes a difference. Thank you for your support this year and every year past.

With love and determination I ride for Aleks.


My Achievements

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