Welcome to my Page
As our friends and family know, Aspen has CF and every day is a battle of medications, treatments, fending off the colds & flus that threaten to make life complicated, and the desire to just have one day where she didn’t have to do all this. What you probably don’t know is the remarkable work that the Cystic Fibrosis Foundation does to advance research to extend the lives of those with CF and to make the desire to live a “normal” day a reality. The CFF is the vanguard for partnering with pharmaceutical companies and funding research to develop medications to not only address the damage done by CF but to ultimately address the underlying faulty gene. Kalydeco has changed the lives of many with CF but it only addresses a few mutations at this time and there is still much work that needs to be done.
The money raised by this ride, and several other events throughout the year, will support the advancement of medications and add many more tomorrows.
For those on the team, keep an eye out for emails detailing "training events" at various craft breweries.....
"...as cliche as it may sound, I'd like to raise another round
And if your bottle's empty, help yourself to mine
Thank you for your time and here's to life"