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Kevin and I are very excited that he will be starting the Kalydeco on 2/18/15. We have been waiting for over a year for it to be available for his gene mutation. We are hoping for big changes. The drug essentially halts the progresssion of the disease. There are mixed reviews on the drug and research continues. This research costs the drug company a lot of money which is passed on to the CF consumer. Please support us to find a cure. The CF Foundation has been working with Vertex to make sure the drug is available to all CF patients with affordable co pays.Thank you for your support in our fight to cure this debilitating disease.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I ride for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By cycling, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my CF Cycle for Life fundraising campaign today!
The CF Cycle for Life is a unique event that empowers cyclists to take action and demonstrate their fight in finding a cure for cystic fibrosis in a tangible, emotional and powerful way.
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Help me reach my fundraising goal!