Login

Dan's Page

Pittsburgh CF Cycle for Life 2017

Learn more about this event.

Fundraising Progress

0
10
20
30
40
50
60
70
80
90
100
110+
Donate to Me

Raised: $11,900.00

Goal: $10,000.00

Welcome to my Page

  • A TRIP TO THE HOSPITAL
  • HEADING TO THE GOLF COURSE

Thank you for visiting my page and Thank you to anyone who has previously donated.  Anyone is welcome to join in with a donation this year.

Amelia is my grand daughter.  She was diagnosed with Cystic Fibrosis (often refered to as CF) at 6 days old.  Since then she's fought every day to stay healthy.  She's funny, smart, and likes to make "Pop Pop" (me) play with her while she does her Physio Therapy (lung clearing).  In May of 2015, we welcomed another granddaughter who also has CF.  Her name is Penelope Jayne.  She spent the first 74 days of her life in the hospital with a stoma (her bowel was cut and a bag was added) because when she was born she had a blockage in her bowel due to CF. She's a spunky, crazy, fearless little girl with a big toothy grin! 

Cystic Fibrosis is a Genetic disorder that affects Amelia's lungs and digestive system.  It creats a sticky mucus in the lungs which leads to scarring and eventually failure of the lungs.  In addition roughly 1/3 of people with CF develop CF related Diabetes.  CF also prevents natural enzymes from reaching the stomach, leading to failure to thrive issues and difficulty maintainting a healthy weight.  Average life expectancy is in the mid 30's but that has been steadily improving because of donations to foundations like the Cystic Fibrosis Foundation.  Children born in the 1980's with CF were not expected to reach school age!  Today great strides are being taken in the search for a corrector and a cure.  We are so very close, but we still need your help!

My team is trying to raise $25,000.00 for the cystic fibrosis foundation.  Please consider donating and helping Amelia and Penelope add to there tomorrows.  

Comments

My Achievements

Ride With Me!

Register for This Ride