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Erin's Page

Tennessee CF Cycle for Life 2019

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Fundraising Progress

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Raised: $12,350.00

Goal: $1,000.00

Welcome to my Page

Thanks for stopping by. I'm a mommy to a beautiful, energetic, silly, adorable little boy who loves dancing, the water and being outside. He is your typical two year old, except that he has cystic fibrosis, a genetic condition that causes thick mucus in the tubes of his body. This mucus can clog the lungs and obstruct the pancreas, making him more prone to lung infections and digestive issues. 

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. Still, that's just not good enough for me. 

I am raising money for the CF Foundation, because I truly believe this is the best way I can help save my son's life. We are on the verge of new drugs, new treatments and medicinal advancements that will allow Levi to lead a full and active life. This is my mission as a mom. Help me find a cure for Levi!

My husband and I spend about 2-3 hours a day administering breathing treatments and chest percussions to help keep Levi's lungs healthy, in addition to remembering his daily list of medicines. It seems overwhelming, and it was at first, but I know CF moms before me would have given anything to have the treatments we do today.

I am both scared, but excited for the future as we learn of new advancements that will help all CF patients. 

I promise you that a gift to the CF Foundation is one that will directly go to drug research for drugs like Kalydeco, Lumacaftor, and other new therapies to help fight Levi's specific genetic mutations Double Delta F508. 50% of all CF patients carry at least one of these genetic mutations, but there are 1,800 different mutations that have been discovered, so the more research we can assist with the better the outcome of everyone with CF now and in the future.

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