Welcome to my Page
The Heartwood Team is cycling for life, cycling to add tomorrows.
Our daughter has cystic fibrosis. She was diagnosed at age 13. Just at the time when she should have been spreading her wings, developing her own identity, and gaining independence, she became subject to ever-increasing restrictions on her freedom. She and I were suddenly bound together by IV tubing. There have been many hospitalizations. There have been many more times that she could not participate in what all the other kids were doing, because she was in the hospital, had a central line/catheter, was having reactions to her meds, or had lost her voice because of her breathing treatments. Each time she is told that she cannot participate in an activity with her peers, she accepts it and moves on. She has been on toxic meds that make her so sick she wants to quit, but she always fights on. She has been sick in the parking lot before school, and still chosen to go to class. She has been on meds that injure her kidneys, her liver, and her hearing. But she keeps on. The kid is tough as nails. AND she has managed to keep her bubbly, sunshiny personality intact!
But we are racing against time.
Our team is cycling to add tomorrows to the lives of the many people struggling with CF, a progressive disease that, so far, does not have a known cure.
The Cystic Fibrosis Foundation has made remarkable strides in research for a cure and for more effective therapies; the Foundation also helps patients pay for their medicines and advocates at the federal and state levels to increase access to care and funding for research. For more information about what the Foundation has done and is currently working on, please visit www.cff.org.
Please join us, either by riding as part of our team on Saturday, September 30, 2017, or by donating to the Cystic Fibrosis Foundation by clicking the blue button above.
(Note: The button above is not to "donate to me," but to donate to the Cystic Fibrosis Foundation. Wish they'd label that differently.)