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Jenette's Page

Chicago CF Climb 2019

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Fundraising Progress

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Raised: $2,182.50

Goal: $500.00

My CF Climb Story

 

 

Oliver Gregory was diagnosed just three weeks after birth, our family was devastated, but that didn’t stop us from learning and bringing awareness to this Progressive Disease. Oliver is now 2 years old and doing really well with his health & weight (becoming very picky as a turkey toddler). Oliver's a very happy little guy given all that he's going through on a daily basis. Oliver continues to do many treatments including an Inhaler to open up his airways, then CPT (chest compressions with The Vest machine) for twenty-three minutes to loosen the mucus in his lungs, and a nebulizer treatment while he has the Vest on to break up all the mucus in his lungs.

Ollie takes enzymes daily in order to digest his food properly. As Ollie grows and his daily caloric needs increased, so does the dosage of enzymes. He must take about 24 pills a day, just to digest his food. That's about 8,760 pills a year just so he can eat and maintain a healthy weight. He now knows to remind me about taking his "medicines" before eating. He so smart!

we will CLIMB for Oliver! Will you join us? Will you CLIMB with Oliver to find a cure?

Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers – all struggling each day just to breathe and live normal, healthy lives.

Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.

While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in CF Climb, I am helping add tomorrows to the lives of all people living with CF today. 

Please make a difference and support me by donating to my CF Climb fundraising campaign today!

Donate an amount that is meaningful to you, thanks.

 

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