My CF Climb Story
Dear Friends and Family,
Please join me in the Cystic Fibrosis Climb for a Cure event. This is a very worthy cause, one that I am particularly passionate about because my son, Jack, has Cystic Fibrosis (CF).
In people with CF, a defective gene causes a thick buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria, leading to life-threatening lung infections. Because the rarity of the disease, there is no NIH funding, and pharmaceutical companies aren’t actively investing in new CF specific medications. Sixty years ago, most children did not live long enough to attend elementary school, but thanks to Foundation-based research and care, the median survival age of people with CF is now about 40. The Cystic Fibrosis Foundation raises money to support the research for a cure and believe that one is imminent in the next 20 years!!! You can be a part of this, which when discovered, will be one of the largest medical discoveries in our lifetime, and ultimately help my son have a chance at living a full life.
Our family has been involved in this event since its inagural year which was also the same year our son, Jack was born and diagnosed with CF and we invite you to join us! Climbing the stadium is challenging, but is a reflection of the challenging journey CF individuals deal with on a daily basis to live a normal life.
If you aren't able to join our team, please consider donating to this very worthwhile and meaningful cause. It IS making a difference, as the life expectancy is increasing every day because of your generosity and compassion. Your gift will help add tomorrows to the lives of people like Jack with CF.
Thank you sincerely for your support.