My CF Climb Story
Over a year ago I joined an amazing non-profit orgaznization called I run 4 Michael. This orginization pairs athletes of all levels with children and adults who have physical, mental, and developmental special needs. I was lucky enough to be matched with an amzing 7 year old girl named Evelyn (Evi for short) living with Cystic Fibrosis.
Evi is your typical 7 year old girl who loves nature and spending time with her friends; Her mom tries to ensure that Evi gets to live and love life as normally as possible. There are some daily challenges living with CF; Evi does a vest treatment twice a day for 30 min. each to help clear her lungs of mucus. She also does breathing treatments of hyper saline 2 a day and pulmozyme once a day. She takes special vitiman to help keep all her levels normal and around 20 enzyme pills daily called creon. Her weight is always a constant struggle to keep her from being underweight. She has to have over 2000 calories a day.
Once a year Evi has an annual check up and that's when they do blood draws, and xrays to see what kind of scaring has happened to her lungs, liver and pancreas.
She also goes to the clinic every 3 months for check up to check her PFTs, cultures on lungs, weight etc....
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I was amazed at all the advances that had been made in helping to find treatments to help those living with CF but also saddened to see that there is no cure for CF and the lives of people with CF are cut far too short.
CF Climb is a unique event that empowers participants to take their search for a cure to new heights.
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