The Need There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Cystic Fibrosis is a genetic disease that not many people know about. To have this disease both of your parents have to be carriers of the disease. This does not mean they have it, but if both your parents are carriers and they have your. There is a 25% chance that you, the child will have this disease. If you get tested you can stop this disease. Every year we raise money to find a cure for this disease. We do a walk in NYC every year and donate money.
Why I am doing this.
Hello, my name is Daniel Dippold. I go to the The Red Oaks School, in Morristown NJ. First I would like to thank you both for having that event. Curing Cystic Fibrosis is very important to me. I would like to tell you my entire project and story. My mom, and her best friend from college had my best friend and I born around the same time, so we could be best friends, and grow up together. Before he was born, his parents both realized that they were carriers of CF. They knew that he would have it. They set up a table at the NYC Great Strides event. We have been doing the walks for our entire lives. When we were doing projects at school to help our communities, I knew I had to do this. This is a year long project, and I have classes every week. He does not go to the same school as me, but I want to help more than I ever have. I knew this should be my project.I understand that raising money is important, but I don't just want to collect money.
I want raise awareness for genetic testing, so less people have CF. I have gotten a lot of information so far, from his mom, Dawn Zolek, who is on the board of Great Strides. Last weekend, 5/28/18, Stanley was at my house to watch The 100 season 5 premiere. That night, he slept at my house. At 11:15 pm, after seeing Avengers Infinity War, and we were trying to go to bed, Aunt Dawn,(his mom), had to come in my room, and give him medication. He seemed fine. Now,two weeks later, it is the end of they year, and he has to miss 3 weeks of school, because he has to get a picc line, to give his body medicine. He got an infection, and now he is missing the last few weeks, of 8th grade. Cystic Fibrosis victims have to do insanely difficult things to live. These are the types of things CF victims have to deal.
Coming up soon, will be a year since my project and Stanleys Citys Slickers becoming a National Team. I did not want my project to end there, so I reregistered for this year, 2019, because with your help, we can make CF stand for Cure Found.
Year 2 of Stanley's City Slickers being a National Team!
Help Stanley and other Cystic Fibrosis victims make CF stand for Cure Found.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.