I would like to thank you for taking the time to read why I always participate in The Great Strides Walk for Cystic Fibrosis and why this is so important to me and my family. My sister in law was born with Cystic Fibrosis and has recently fought for her life. Spring 2016 she was hospitalized and not sure how much longer she had as her lungs were giving out on her and she couldn't breathe on her own anymore. She was 32 years old and was living on oxygen 24 hours a day 7 days a week. She no longer could live the life of the average person. After many conversations with her family, her Husband (My Brother), and all of her doctors - they finally decided that Caitlin needed to go for a double lung transplant.... yes, I said a double lung transplant. After this decision had been made their lives started to change. Caitlin, Ricky and Delta (their German Shepard) Packed up their truck and temporarily moved to Morrisville, NC where Caitlin would start the process at Duke University to prepare for her New Lungs. Everyday they would meet with numerous doctors, run lots of tests and they even had to take classes all to prepare themselves for what was to come. Some classes and treatments were easier than others.... it was a full time job for the both of them. On October 6, 2016 Caitlin was officially listed for a Double Lung Transplant....and not 24 hours later they got the call. Yes, THE CALL THAT WOULD CHANGE HER LIFE. They went to the hospital and on October 8, 2016 Caitlin received her NEW SHINY LUNGS! Caitlin is doing amazing. She Ricky and Delta are all back in NJ after 6 months. She is exercising, walking, shopping, and she is back to work. You can read all about her journey on Facebook "Keeping Up with the Joneses"
I ask that you contribute in any way that you can.... even $5.00 helps! I would love for you to share Caitlin's story to anyone else that is going through what she has. It is an incredible journey that she has decided needed to be shared with your families and friends.
Caitlin is doing amazing and continues to share her story on Keeping up with the Joneses on Facebook. Please check out her page to read her full story!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.