As I sit here enjoying the fall air, and sipping my #StarbucksPumpkinSpiceLatte, it occurs to me that it is no longer May…when this letter was supposed to be distributed. I’ve even heard from some of you who were concerned by the silence, asking if everything was alright. The answer is yes, I’m just incompetent. That may be a bit harsh…it has, after all, been a busy year. As some of you already know, I finally scored that darned college degree I’ve been working towards. My dog Zoe also accomplished this goal, as evidenced by her distinguished grad cap. I am, however, still at Quinnipiac for round two. I’m currently in a public relations graduate program (same vein as my undergrad). So far, I love it. Although this may have something to do with the fact that I’m no longer taking 19 credits each semester…but who knows… The dream is that I will graduate in May, complete either a thesis or professional project over the summer, then…gulp…get a full-blown-big-girl job. This job will preferably pay money, but I’m not picky. As for the rest of the Cray clan, they are all crushing the game. Mom is still volunteering at St. Christopher’s, and continues to contribute to a national project about patient-centered care. Her name appears on multiple journal articles, and she’s just returned from Washington, D.C. where she spoke at a research conference. I must say, the woman is quite hoity toity, pardon my French. Dad, madman that he is, has channeled his inner lumberjack and built us a deck in our backyard. The project involved some minor injuries, some major profanity, and lots of love. But alas, now we have a beautiful repose in our backyard whereas before there was only hillbilly lawn furniture. We’re really classing up the joint. David and Rebecca have been enjoying their first year of marriage. Rebecca, to her immense credit, has even managed to socialize my misanthropic brother. The couple continues to live the unconventional, yet colorful life of two millennials down in Florida. They recently moved into a house where their two dogs have a yard to frolic through or more likely, sleep in. And now for the cystic fibrosis update… I am currently in the middle of the first course of IV antibiotics since my sophomore year. While it is true that IV antibiotics suck as in, truly suck it’s remarkable to me that it’s been so long since my last course. There was a point while I was in high school when I was told I needed to do IVs every six months. But look at me now! This once again reminds me that I have more than luck on my side. The medications that saved me when I was a teenager have also made my CF more surmountable and of course, these medications would not have been developed without the love and support that you all have provided for so many years. Thank you all so much for sticking with me through this.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.