The Xtreme Hike Spotlight Series features individuals who inspire and bring hope to their local CF community and raise funds and awareness for cystic fibrosis – all while hiking through some of the most scenic trails in the nation. We hope these stories give you an insight into the determination and passion of these hikers, and that you consider finding a hike near you to add tomorrows to those living with cystic fibrosis.
Click here to meet others featured in the Xtreme Hike Spotlight Series.
Why I Hike: Dana Trokey
Twenty years ago, as Dana Trokey sat in the hospital as a new mom, she learned that her newborn daughter, Isabelle, had cystic fibrosis. Ever since then, she and her husband, Mark, have remained dedicated to raising awareness for CF and participating in their local chapter events in St. Louis, Missouri. This year both Dana and her husband are excited to be serving as co-chairs for the 2018 Gateway Xtreme Hike – with a goal of raising $100,000.
In the past, Dana has participated in the event by working the aid stations and as a virtual hiker, but this year she aims to hike the 30 miles through the Ozark trail with the support of her daughter. “In the last year I’ve had three surgeries and one incidence of bilateral pulmonary emboli, or blood clots in both of my lungs,” she said. “It’s given me an idea of what my daughter goes through. She has always persevered with her plans, so once I get the go-ahead from my doctor, I hope to follow her example and resume my training.”
The Trokey family’s community of support has helped them raise funds needed to accelerate innovative research and have provided them with emotional support as well, particularly in tougher moments. “Many friends have been with us in the fight since the beginning,” Dana said. “They know how many times Isabelle has been hospitalized and how harrowing those times were, so the fact that they can see how these drugs are actually making a difference in her life is encouraging.”
If there is one thing that Dana has learned, it is that once you attend your first Xtreme Hike event, you will likely return. “Our team members are amazing individuals -- they are willing to challenge themselves both physically and philanthropically. The comradery that develops among our hikers is amazing as well as the friendships that form -- our team continues to grow every year.”
In This Section
Why I Hike
Dana Trokey shares her story about becoming involved with Xtreme Hike and how she draws inspiration her daughter, Isabelle, who lives with CF.
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