Great Strides, Great Stories
Great Strides is the Cystic Fibrosis Foundation’s largest national fundraiser. Every year, families, donors and friends take steps to help support the search for a cure. Each month through the end of the year, we’ll feature a special person or team who played an integral role in the 2014 Great Strides walks. We hope you’ll find this story to be inspiring as we continue to make Great Strides in our efforts to find a cure for CF!
KC White — Friends of KC
Chapter: Northern Ohio Chapter
Team: Friends of KC, led by KC White, who has CF, her husband, Justin, and son, Mac
Impact: Raised $36,668 so far in 2014
Why I Walk
I was diagnosed with cystic fibrosis at the age of 3. I have always been involved in the Foundation through special events, but I learned more about Great Strides through my friend Holly. She has led a Great Strides team for the last 15 years. I was inspired by her success as a team leader and I knew Great Strides would be the perfect platform to get my friends and family more involved in fundraising for the Foundation.
How I Fundraise
When I started doing Great Strides, I didn’t just form a team in one location. I have friends and family who serve as team leaders and lead walks all around the country. Because we don’t all live in the same city, we rely heavily on the Great Strides website and social media to stay connected and raise funds.
I also write letters to my team leaders. I talk about my CF, the latest in CF research and care and new things the Foundation is doing. My team leaders use part of that letter to write their own letters to their friends and family.
Here in Ohio, I do a happy hour wrap event. We call it Chagrin Falls for Cystic Fibrosis, or CF for CF. It’s another great way to bring people together to raise funds and we’ve gotten really positive responses from our local community.
What the Foundation Means to Me
The CF Foundation has always been a constant support in my life. I know that I am alive today because of advances in research funded by the Foundation. Foundation leadership, staff and volunteers are a huge source of hope and inspiration for me and my family, and I couldn’t imagine where I’d be without their dedication and hard work.
My Favorite Thing About Great Strides
I love that Great Strides is something everyone can participate in, no matter their background, location or income. I get $5 donations and donations of several thousand dollars. Every dollar makes a difference.
Every person with CF has a unique and inspiring story to tell. By having a Great Strides team, you’re able to tell your story. And, it’s a great way to get friends and family members to join you in supporting the search for a cure. I think that’s something that’s very powerful.
When I was diagnosed with CF, the life expectancy was in the teens. My parents had one goal for me: to live long enough to graduate from high school. They thought that if I lived that long, they would have gotten an idea of the adult I would become. Because of advances in CF research, I graduated from high school and college. I was able to get married and I am a mom to my son Mackie. My dream is to be healthy enough to watch my son graduate from high school and college, to be at his wedding and to hold my own grandchildren some day.
I know the CF Foundation is committed to finding a cure for every person with CF, and I know the Foundation won’t rest until that mission is complete. I’m proud to be part of an organization that will continue to work hard until the job is done.
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Great Strides, Great Stories
Great Strides team Friends of KC has raised over $36,000 so far in 2014 to help support the Foundation’s mission.
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