Kaitlin Standley

Hi! I'm Kaitlin, a 32-year-old living with Cystic Fibrosis. I was diagnosed at 6 months old and have been fighting CF ever since! Meet my family (pictured above) - my hubby Kiefer and our little babes, Palmer and Fletcher.

In my earlier years, it was always warned that I (along with many others living with CF) would never live long enough to see or achieve life’s accomplishments such as go to college, get married or start a family. CF was classified as a “childhood” disease.

But, thanks to fundraisers such as this one, leaps and bounds have been made in research to enhance and extend the lives of those living with CF! I’m beyond blessed to say I’m now a nurse working at the same hospital where my CF center is located, married to my best friend and together we have two beautiful babies! 

Medications called modulators such as Kalydeco, Symdeko and Trikafta have been classified as a “corrector” for the protein malfunction in CF. However, even with such advancements there is still no cure and those with CF who don’t qualify for a modulator due to their CF genes.

This is why raising awareness is so important to me! This is why I’ve started the Great Strides team Lungs N Katie’s Roses, so that together, we can make CF stand for Cure Found!

Please visit simply65roses.com to order your gear! 50% of items sold under our Salt. AND Great Strides Collection will be first donated towards a Butterfly Wagon at Nationwide Children’s Hospital (goal $1500). Any remaining fundraising efforts will be donated towards our team on this page to help reach our overall goal!

If you wish to make a donation directly to our team, you can do so on this page.

If you wish to make a donation directly towards the wagon, please e-mail simply65roses@gmail.com for more details. 

Thank you from the bottom of my heart for supporting my team!