Heather Daugherty

Click DONATE TO HEATHER for LIGHT IT UP FOR LILLY donations & Destin raffle tickets!!!

Light It Up For Lilly

Date: August 24, 2024

Time: Pre-show events start at 6pm & fireworks start at dark!

Location: 3403 S. Farm Road 227 Rogersville, MO 65742

Light it up for Lilly is a fireworks show that raises money for the Cystic Fibrosis Foundation so they can research new meds/treatments and eventually find a CURE for people with CF! There is no federal funding for CF and so it relies on the donations through events like this to accomplish this goal! Come celebrate being back to school and enjoy food, ice cream, face painting, bounce houses, outdoor games before the fireworks show at dark! There is no cost to get in....there will be a place to donate if you'd like though! We will also be selling raffle tickets to win 5 days at a condo in Destin, FL in 2025! The condo is on the beach and sleeps 8! Tickets are $25 each or 5 for $100!  You can donate here or you can buy them at the fireworks event! You can email lillysraffle@gmail.com with any questions!  We hope to see you there!!!

Lilly is 15 years old & has cystic fibrosis! She's had 10 surgeries & takes over 45 pills a day! She also does hours of breathing treatments & vest treatments every day to help keep her lungs healthy (that time doubles when she has a cough). She just retired from the competitive gymnast world and is now taking on cheerleading!!!  The exercise is great for her lungs. In Aug of 2020, she started a new medicine Trikafta. It has completely changed her life and that is only possible because of the money we have raised for the foundation since there is no federal funding for new medications!  Now we just need to find a final CURE for ALL people with CF so please keep donating!!! Thank you for your support!!!

You can follow Lilly's journey with CF at lillysstriders.com

We will also be walking in the Great Strides Walk for CF on Oct 12h at Rutledge Wilson Farm Park if you'd like to join our team!