Ethan's Hummingbirds

This year is so significant for Ethan and us as his parents. It marks a large milestone within the cystic fibrosis (CF) community. When the foundation was started in 1955, kids with CF were not expected to live to start kindergarten. However, this past year the average life expectancy jumped to 56 for someone born between 2018 and now!

And in just a few short months Ethan is going to be starting kindergarten!! 

When he was diagnosed as a newborn, we decided to take everything one day at a time. There were so many new things to learn, adjustments to be made at home, breathing treatments and medications to manage, so many doctors, and travel and life in general. But as the years have passed, this is our life and we couldn’t imagine things any different. Watching Ethan grow and thrive over these past 5 1/2 years has been a true blessing. We are so incredibly thankful he is growing up in a time where CF has so much hope (and real clinical trials) for a cure! Wow!

In the 5 1/2 years since Ethan has been diagnosed, we have seen so many scientific advancements in the field of cystic fibrosis. One of those is a groundbreaking modulator drug, Trikafta, which he has now been taking for almost a year. This drug allows Ethan’s lungs to work similarly to a typical five-year-old’s. This drug has given so many people in the CF community a new lease on life. Without the foundation, this drug would never have been possible and furthermore donations like yours that fuel the studies, trials, and treatments.

Every dollar that the foundation receives goes towards these truly amazing advancements for cystic fibrosis.

Thank you for your love, support, and generosity. We are so thankful for each and every one of you!